It has been a while since my last entry. I did not realize HOW long until I crossed paths recently with a former coworker. Like so many interactions in life, most of interpersonal dialogue tends toward superficial moments you're both currently experiencing such as, "It looks like it's going to rain."
"So what happened to your blog?" she asked instead. "You were writing regularly, then just stopped."
I dunno, I thought. The skies look plenty clear to me.
Then it occurred to me this conversation was not about rain.
I have a blog?
"Oh," I said. "The one about my daughter? I didn't think anyone read that."
"Well I did," she said. "So you should get back to it."
"Sure," I said, laughing. "I'll get right on that."
So I did.
It is easy to lose track of time when one is absorbed in the day-to-day. I have to remind myself that there are plenty out there who love and pray for my daughter, but don't have the luxury of seeing her on a daily basis.
So in no specific order, here are some selections of what's happened in Miriam's life since my last entry. Consider it a Five-Minute Catchup:
She recently used her device to tell us to Stop because we were not attending to her fast enough. A couple of times, if she did not get her way, she announced I am angry.
She has also started this new expression of a lower-lip and exasperated breath, the pffffbb of someone irritated when she bored.
Yep. She's a pre-teen.
Since being on the ketogenic diet, Miriam's seizures went from 1-5/week to none in over two years. Extraordinary.
The Also Good News:
Mom and caregiver diligence has helped reduce Miriam's "tone-tantrums." This means she is not so stiff when she's uncomfortable and burning so many calories. She's grown over an inch and is finally gaining weight.
Replacing her leg-joint back into its socket during her double-hip surgery revealed serious scoliosis of the lower back. She's now using a brace regularly (with Batman labels, naturally). The specter of back surgery looms in her future.
Making lemons into lemonade, Sharla wants to use the gnarly metal rods that were removed from Miriam's hips to hang curtains. Or melt them down into cool 80s punk jewelry. Rad!
Upon becoming twelve years old, Miriam now attends the Young Women's program in our church. She was kindly welcomed with fun chalk drawings on her birthday.
We are thankful to those friends and caregivers who worked together to watch Miriam while we were away!
He is serving in Colorado for two years, without pay, and enjoys the experience.
Just the other day, Miriam mentioned on her device––with no prompting––
Yes, she does.
There'a a good deal more to share, but I promised five minutes...and my time is up.
Thanks for reading.
(And yes, it does look like rain. At least by tomorrow.)